We are engaged in a battle
to define the worth of human life…
In a land that defines itself as the best of everything
The question is whether or not
access to that best
need be an artifact of position,
or wealth or material circumstances,
of social standing and class.
In a land where no one need die of untreated illness
Can we live in such a way that the benefits
of our knowledge and science
be a gift to all our people or
must it be rationed only to those
who meet some financial criteria or position?
The question is whether or not
some lives are disposable,
that people can cost too much.
And if people cost too much
what value, what true value
do we hold any life?
It is a question
not of what we can do,
or what we can afford,
but of who we are and
who we can become.
In times increasingly mean,
it is ultimately a question not
of what we can survive,
But rather in the final measure
can we survive ourselves?
We are engaged in a battle
The greatest and most immediate threat to people with mental health diagnosis, who struggle with mental health issues in their life occurred yesterday: the Supreme Court heard the case to obliterate the Affordable Care Act. The plaintiffs took 4 words out of a couple of thousand page bill and based on those 4 words want to essentially take health care insurance from 8 million people. If they are successful early estimates are 8000 people will die.
Every study I have ever heard of says people with “mental illness” die earlier, as much as 25 years earlier, than those without. They tend to be disproportionately poor, disproportionately with no health care insurance and either get poor or no health care at all. And indeed if 8000 people a year die they will be disproportionately represented amongst those 8000.
If tax subsidies are stripped from those on the federal health care exchange then it will be up to states effected to set up state exchanges. If they don’t the result in those states will be chaos for hundreds of thousands people who suddenly have no way to access medical care and a death blow to many medical systems who will find themselves inundated with the care of people who cant pay for it.
Courts are supposed to be based on an examination of the evidence. Supreme Court decisions are a function not of evidence but of the political ideology of the judges that make it up. From what I understand everybody but two people had decided before the first word was spoken yesterday. John Roberts and Anthony Kennedy will decide the fate of millions of people and they will have more immediate effect on the lives of those with “mental illness” than anyone else in this country.
And the states. What is their plan should the worst happen? From all I can see they don’t have one. One senator in Tennessee wants in the name of conservative principles to make it illegal for Tennessee to start a state exchange. 280000 be damned. He wants to teach Barack Obama a lesson.
In terms of threat, in terms of the systematic and deliberate exclusion from essential life giving and life enhancing services, this, more than all the Dr. Torrey’s in the world, is the greatest threat to the welfare and quality of life to those that struggle with “mental illness” in this country.
The argument has been made in some version many times. It is powerful. It is emotional. And it is so very, very wrong. It distorts the facts and in doing so prevents solutions to a very real problem.
The argument goes something like this:
1. Treatment works.
2. Jails are filling up with people with mental illness. The usual figure quoted is 325,000.
3. This crisis is the result of their failure to access treatment. (Because of course treatment works)
4. The solution is to force people to accept treatment so they will no longer commit crime.
AOT will solve the problem of the mentally ill in jail…
The argument has more holes than it has argument. Many people might argue that the across the board assumption that criminal behavior is a result of a defiency in mental health care is simplistic nonsense that obscures the real causes of crime and makes dealing with those causes much more difficult.
And then there is AOT itself. In no state is it meant to be anything other than a very small part of a very big picture. People who argue for AOT say it is not a big problem because it is not a big anything.
The previous post talked about Orange County. They have over 3 million people. The latest figure I could find was that they had about 7000 people in county jail. They hope someday to serve 120 people in AOT. They, it seems, see it as appropriate for very few people in their mental health system. I wonder if you told them that AOT is the answer to their jail population if they might not question your appropriateness for AOT.
The Murphy hype in no way matches the AOT reality. The costs are prohibitive. In Orange County if you combine treatment costs and administrative costs it comes to over $45000 per year per person served. Not exactly affordable. Not exactly an answer. Not exactly anything.
Rep. Murphy tries to have it both ways. In one breath he touts it as a core of his program for mental health reform. In another breath he says that people worried about the ethical questions are blowing things out of proportion. (Another long discussion there) After all it is meant for only a few people.
As a major answer it fails. It fails the eye test, the money test and most importantly the people test. And it obscures the search for real solutions.
And if is only a small thing, a very expensive small thing, and an ethically challenged small thing, but still a very small thing Congressman Murphy what exactly are you proposing as a big solution?
I have seen the bun. Where is the beef?
The link above describes the initial report from the first four months in Orange County, California. If you have not yet read it I suggest you do before reading this post.
Here are some of the early numbers.
500 inquiries. 310 were information only calls.
Of these 144 were resolved without heading to court.
18 referred to substance abuse treatment
19 were already enrolled in outpatient treatment
34 voluntarily went into treatment
24 still outstanding
No one committed to AOT.
The numbers suggest lots of questions but that is not the real point I want to make.
Orange County has 3.14 million people in it. If you believe the statistics of the TAC 157,000 of them have a “serious mental illness.” If you further accept their ideas about anosognosia 78500 of them do not have awareness of their illness, despite severe and disruptive symptoms. The goal of Orange County is to perhaps serve 120 people a year. It would seem 78380 people are missing!
The 120 people would cost 5.7 million dollars, perhaps as much as 6.1 million. That translates according to the article treatment costs of $18600 per person. What that also means is that the non-treatment costs per person is $28900….a total of 47500 per person. No mention is made of costs for the missing 78380 people.
Nevada County in California hopes to serve 36 people a year at about the same cost per person. My Tennessee measuring point is peer support centers that serve about 3500 “severely disturbed people” for about $4 million or about $3 a day.
Why the emphasis on numbers? The mythology of Torrey, Murphy and company is that large numbers of people with “severe mental illness” are resistant to treatment, that that resistance is a symptom of their illness, and that widespread use of coercive intervention is not only justified but a central feature of real mental health reform.
The numbers tell the lie. 120 people. Regardless of what you think of AOT for any particular person or circumstance it is simply not true that this represents a central need or that there is a widespread justification for coercion as a central figure of the mental health system. In New York, the promised land of AOT, 1/3 of 1% of the people served by the mental health system are in the AOT program.
It doesn’t mean that some people dont lack insight. They most certainly do. What it means is that the narrative that large numbers of “severely mentally ill” people are resistant to treatment and that resistance is a symptom of their illness is simply not true.
The irony of AOT is that a program proposed by die hard “advocates” for the “severely mentally ill” serves basically next to none of the “severely mentally ill” and there is no evidence that it is appropriate to meeting their needs. It is the loudest small program in the mental health system of many states and like in most things volume is no proof of value or importance. If you judge it by what it advertises itself as….the salvation of the “severely mentally ill” it fails.
There is no promise, no guarantee that if you speak out and speak on issues important to you that you will ever be heard. No guarantee not now…not ever. The only guarantee is that you will never be heard if you don’t.
Sometimes speaking out is not even about what we say as much as becoming the kind of person we want to be.
Make your voice count. Use it.
Some things just lead to bad things. Some people lead to bad things. We all spend too much time way too much time watering the weeds….Take care of what takes care of you.
Watchdog: A look back at Laura’s Law in Orange County, which forced mentally ill people into treatmentFebruary 28, 2015
Watchdog: A look back at Laura’s Law in Orange County, which forced mentally ill people into treatment The Orange County Register
【from Next Browser】
From the archives
Originally posted on Hopeworks Community:
Over the last 3 days DBSA president Allen Doerderlain has visited Tennessee. Linda and I have had the pleasure to be his traveling companions over the much of that time.
More than anything it has been a conversation about community. So much about the conversation is either/or. It is about protecting the rights and ensuring a chance for better life for “consumers” or addressing the concerns of family members who feel hopeless to deal with the suffering of their loved ones and themselves. So much of the debate has been about how to help one at the expense of the other. There is a national debate right now about the Murphy Bill which makes me wonder if any solution that is either/or will really ever solve anything.
Allen met with people in Chattanooga, Maryville, and Nashville. Today he goes on to Jackson and Memphis. Everywhere there have been both family…
View original 349 more words
Fixing America’s Mental Healthcare System | TheHill
【from Next Browser】
The link above is to the recent Murphy commercial on “The Hill”. It was billed as a serious story but it was closer to infomercial. A lot of softball questions and a lot of homeruns. I would have paid a lot of money to see the look on Rep. Murphy’s face if when he started talking about the necessity of treating the “whole person”, addressing both physical and mental health at the same time if the moderator had asked if he believed that so much why he had voted to repeal health care reform that made that possible many, many times.
I would have paid a lot of money to see that. But alas there were no deviations from the script.
This was also the first public display of Sen Murphy who says he is going to introduce a bill on mental health reform in the Senate. He says he is not related to the Representative but after hearing him I wondered. Mental health consumers I know in Connecticut are confused and alarmed. They thought he had clearly heard their problems with the Murphy Bill. They are more than a little nervous right now.
The presentation ended with a second panel. What caught my eye was on Facebook DJ Jaffe assured people that although the Murphy’s had been great there was absolutely no need to watch the second panel. Needless to say watch the second panel.
The R word (recovery) was actually used and some good points made. What stood out for me was when one of the panelists handicapped the Murphy Bill’s chances of success. He thought 50-50. The main problems he saw was the cost (big ticket anything was going to face tough sledding) and the White House. It basically means Obama would have to do a 180 on mental health policy and come out against what he has already supported.
I wonder too about the Senate. Based on the early returns Republican control of the Senate does not mean the same thing as Republican control of the House. I think Obama problems will happen in the Senate long before it gets to the point of veto.
We will see. I had hoped to see more than an infomercial but I did find out there was more than one Murphy. Hopefully first impressions are wrong.
And don’t listen to Mr. Jaffe. Listen to the second panel.
The goal of the DBSA is, as part of their ongoing effort to increase the availability of quality and effective mental health care for all, is to find a way through the development of a mechanism for effective grassroots advocacy for the members of their support groups and other involved or interested people to have a real voice in the decisions made about mental health in the public sphere that affect the quality of their lives. In short, take “nothing about us without us without us” from sentiment to reality. Make the voice of ordinary people count.
The effort is in its infancy. The DBSA is concentrating on 6 states right now with hopefully more to follow soon. As chairman of the effort in Tennessee I will be giving periodic progress reports. My intention is to both share where we think we have made progress as well as where we think we need to do much better. We have no secrets and freely share everything in hopes you may learn from our experience and us from you.
This is the first progress report.
We start from the idea that we must build the capacity to advocate. There is no advocating without advocates and no advocates in a culture that does not see advocacy as a valued choice people can make and try to nurture and empower them in that choice. For advocacy to flower it must be planted.
With that in mind here is where we have started:
1. A letter is being written describing what DBSA is doing and particularly how that affects Tennessee. The sentiment is simple: “These are challenging and important times for those who daily struggle with mental health issues. You have a right to be heard in decisions that affect you and our goal is to help you be heard. We know that advocacy can be a scary and overwhelming idea. We want to give you the tools and support to make it possible.” The letter will be sent to chapter leaders to share with members. Contact information will be provided to get further information. Also we will be letting them know there will be a state wide advocacy training done by national dbsa in the early summer, late spring that interested people can take part in. The initial goal is to get contact information on as many people as possible. They need make no commitments as to any action at this point.
2. Between now and the next scheduled state meeting on April 11 face to face contact will be made in as many support groups as possible. Again the main goal is to let people know what is going on, answer questions, and assess and solicit interest in further participation.
3. In the state meeting on April 11 the grassroot advocacy committee will be presented again. We will also talk about targeted issues. The goal will be to build a state wide consensus for the importance of action and momentum towards that action.
4. The state director and assistant are drafting a letter to legislators both introducing DBSA as someone they will begin to hear from in the future and offering our help and assistance in any way. This letter will also address our concerns about an initial targeted issue: the decision by Tenn Care to eliminate level 2 case management in community mental health centers. Many people in DBSA support groups have been greatly helped by this service and will be horribly impacted by the loss of it. We want to share over time as many personal stories as possible.
5. Make that all DBSA members are aware of this issue and encourage them to contact legislators to share their stories and concerns.
6. Using contacts made and the context of the effort to save case management encourage as many people as possible to attend the state wide advocacy training in May or June.
These are some of our crawl before you walk steps. We invite any comments or feedback.
In Response to the WSJ Op-Ed: Mentally Ill, Drink a Smoothie | Mental Health America
【from Next Browser】
I have a friend who is a psychiatrist. But that is really a part time job. His full time job is being a human being.
I asked him to explain how he does his part time job. (What follows are my notes on what he said. If anything sounds confusing it is probably my doing. He seemed very clear with me.)
1. My job is to help find a way to help them improve the quality of their lives not simply to “manage their symptoms.” Too many psychiatrists “believe the operation was a success even when the patient died.”
2. My first question is not about appropriate medication. It is whether or not medication is even needed. Simply showing up in my office does not mean the issue is settled.
3. Does medication do something for my client that other interventions are not likely to do? Is medication needed to make it possible that other interventions will work?
4. If medication is needed what is the least powerful medicine with the least disruptive and least dangerous side effects that I can prescribe that matches the level of symptoms that I am trying to help manage.
5. The patient must know and understand why I prescribe what I prescribe, how long it will take to work, what benefits can be expected, the most likely side effects to be expected, and any long term danger I am aware of. Most importantly the patient needs to know that while this is my recommendation it is their choice.
6. I don’t prescribe atypical antipsychotics on a long term basis. I believe them to have long term bad effects not worth the risk except in perhaps the most extreme of circumstances. I do prescribe them sometimes on an acute basis when need is high for a quicker response, but I never put someone on an atypical without a clearly spelled out idea how to get them off.
7. I normally don’t prescribe anti depressants for mildly or moderately depressed people. I don’t think they work very well. And I have learned that by and large no one takes medication that interferes with their sex life very long even when they say they will.
8. In the end my job is to help. That means working with people and not on them. If I don’t take care of the human relationship the doctor/patient relationship is not likely to have much of a lasting impact.
He had more to say, a lot more. It seemed worth sharing.